TY - JOUR 
AU - Ghotme Ghotme, Kemel Ahmed
AU - Alvarado Gómez, Fernando
AU - Lampe, Christina
AU - White, Klane K.
AU - Solano Villareal, Martha
AU - Giugliani, Roberto
AU - Harmatz, Paul R.
PY - 2018
SN - 0256-7040
UR - http://hdl.handle.net/10818/36104
AB - Purpose
This study aims to raise awareness of the need for research and appropriate guidelines for managing spinal cord issues in adult patients with mucopolysaccharidosis (MPS) and transition of these patients from pediatric to adult...
LA - eng
PB - Child's Nervous System
KW - Mucopolysaccharidoses
KW - Spinal cord
KW - Transition to adult care
KW - Survey
TI - Spinal cord issues in adult patients with MPS: transition of care survey
DO - 10.1007/s00381-018-3834-6
ER -