Mostrar el registro sencillo del ítem

dc.contributor.advisorMoreno Fergusson, María Elisa
dc.contributor.authorAlarcón Guerrero, Maiter Julicza
dc.date.accessioned2023-04-13T13:46:01Z
dc.date.available2023-04-13T13:46:01Z
dc.date.issued2023-02-14
dc.identifier.urihttp://hdl.handle.net/10818/54558
dc.description86 páginases_CO
dc.description.abstractLas cardiopatías congénitas son la segunda causa de muerte en menores de cinco años en Colombia. La complejidad del tratamiento demanda hospitalizaciones prolongadas en las unidades de cuidado intensivo. Los padres, especialmente las madres que permanecen al lado de sus hijos deben relegar la vida familiar y laboral y afrontar la incertidumbre en un ambiente desconocido en la unidad. Esta situación genera estrés, ansiedad, insatisfacción con la atención recibida y en ocasiones relaciones conflictivas con el personal de salud. OBJETIVO: Establecer la efectividad preliminar de una intervención de enfermería basada en el apoyo al cuidador, comparado con el cuidado convencional sobre el estado de ansiedad y el estrés parental de las madres durante el proceso de hospitalización de su hijo diagnosticado con cardiopatía congénita hospitalizado en una unidad de cuidado intensivo en el periodo 2021 – 2022. METODOLOGÍA: Estudio cuantitativo cuasi experimental de tipo longitudinal con medición pre y post test con dos grupos uno de intervención y otro de comparación. La muestra estuvo conformada por 35 madres con hijos diagnosticados con cardiopatía congénita admitidos en la unidad de cuidados intensivos de una clínica de cuarto nivel de la ciudad de Floridablanca. Para la recolección de los datos se utilizó el inventario de ansiedad rasgo estado (IDARE) y la escala de evaluación de estresores parentales. El grupo de intervención recibió la intervención basada en el apoyo al cuidador: “UN HIJO-UNA MADRE: CONTINUIDAD DE UN ROL” y se tuvieron en cuenta las normas éticas para la investigación en seres humanos.es_CO
dc.formatapplication/pdfes_CO
dc.language.isospaes_CO
dc.publisherUniversidad de La Sabanaes_CO
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.titleEfectividad preliminar de una intervención de enfermería basada en el apoyo a las madres, sobre la ansiedad y el estrés durante la hospitalización de su hijo con cardiopatía congénitaes_CO
dc.typemaster thesises_CO
dc.identifier.local291579
dc.identifier.localTE12219
dc.type.hasVersionpublishedVersiones_CO
dc.rights.accessRightsopenAccesses_CO
dc.subject.armarcAnsiedad
dc.subject.armarcMadres
dc.subject.armarcEstrés (Psicología)
dc.subject.decsCardiopatías congénitas
dc.subject.decsNiño hospitalizado
dcterms.referencesArafa, M. A., Zaher, S. R., El-Dowaty, A. A., & Moneeb, D. E. (2008). Quality of life among parents of children with heart disease. Health and Quality of Life Outcomes, 6(1), 91. https://doi.org/10.1186/1477-7525-6-91
dcterms.referencesAbuqamar, M., Arabiat, D. H., & Holmes, S. (2016). Parents’ Perceived Satisfaction of Care, Communication and Environment of the Pediatric Intensive Care Units at a Tertiary Children’s Hospital. Journal of Pediatric Nursing, 31(3), e177–e184. https://doi.org/10.1016/j.pedn.2015.12.009
dcterms.referencesBéranger, A., Pierron, C., de Saint Blanquat, L., Bouazza, N., Jean, S., & Chappuy, H. (2018). Provided information and parents’ comprehension at the time of admission of their child in pediatric intensive care unit. European Journal of Pediatrics, 177(3), 395–402. https://doi.org/10.1007/s00431-017-3075-9
dcterms.referencesBruce, E., Lilja, C., & Sundin, K. (2014). Mothers’ lived experiences of support when living with young children with congenital heart defects. Journal for Specialists in Pediatric Nursing, 19(1), 54–67. https://doi.org/10.1111/jspn.12049
dcterms.referencesÇakmak, E., & Karaçam, Z. (2018). The correlation between mothers’ participation in infant care in the NICU and their anxiety and problem-solving skill levels in caregiving. Journal of Maternal-Fetal and Neonatal Medicine, 31(1), 21–31. https://doi.org/10.1080/14767058.2016.1271412
dcterms.referencesCalifornia Office of Environemntal. (2020). Nivel Educativo. Retrieved May 16, 2020, from California website: https://oehha.ca.gov/calenviroscreen/indicator/nivel-educativo
dcterms.referencesCantwell-Bartl, A. (2018). Grief and coping of parents whose child has a constant lifethreatening disability, hypoplastic left heart syndrome with reference to the Dual-Process Model. Death Studies, 42(9), 569–578. https://doi.org/10.1080/07481187.2017.1407380
dcterms.referencesCarrasco, K. E. R. (2010). APORTACIONES ORIGINALES. In Rev Med Inst Mex Seguro Soc (Vol. 48)
dcterms.referencesCódigo de Nuremberg. (n.d.). Retrieved March 10, 2020, from Bioetica web website: https://www.bioeticaweb.com/casdigo-de-nuremberg/
dcterms.referencesDANE. (n.d.). Preguntas frecuentes estratificacion. Retrieved May 16, 2020, from https://www.dane.gov.co/files/geoestadistica/Preguntas_frecuentes_estratificacion.pdf
dcterms.referencesDefinicióna, redacción. (n.d.). Significado y definicion de rancuroso, etimologia de rancuroso. Retrieved May 16, 2020, from https://definiciona.com/procedencia/
dcterms.referencesDomingo Cuesta. (2013). Observatorio de Metodología Enfermera. Retrieved November 22, 2019, from http://www.ome.es/02_02_01_desa.cfm?id=118
dcterms.referencesGaskin, K. L., Barron, D., & Wray, J. (2021). Parents’ Experiences of Transition From Hospital to Home After Their Infant’s First-Stage Cardiac Surgery: Psychological, Physical, Physiological, and Financial Survival. The Journal of Cardiovascular Nursing, 36(3), 283– 292. https://doi.org/10.1097/JCN.0000000000000727Golfenshtein, N., Deatrick, J. A., Lisanti, A. J., & Medoff-Cooper, B. (2017). Coping with the Stress in the Cardiac Intensive Care Unit: Can Mindfulness Be the Answer? Journal of Pediatric Nursing, 37, 117–126. https://doi.org/10.1016/j.pedn.2017.08.021
dcterms.referencesGolfenshtein, N., Hanlon, A. L., Deatrick, J. A., & Medoff-Cooper, B. (2017). Parenting Stress in Parents of Infants With Congenital Heart Disease and Parents of Healthy Infants: The First Year of Life. Comprehensive Child and Adolescent Nursing, 40(4), 294–314. https://doi.org/10.1080/24694193.2017.1372532
dcterms.referencesGramszlo, C., Karpyn, A., Demianczyk, A. C., Shillingford, A., Riegel, E., Kazak, A. E., & Sood, E. (2020). Parent Perspectives on Family-Based Psychosocial Interventions for Congenital Heart Disease. Journal of Pediatrics, 216, 51-57.e2. https://doi.org/10.1016/j.jpeds.2019.09.059
dcterms.referencesHarvey, K. (2023). Parents of children with congenital heart defects during the COVID-19 pandemic: An examination of mental health variables, risk factors, and protective factors. Heart & Lung, 57, 130. https://doi.org/10.1016/J.HRTLNG.2022.09.017
dcterms.referencesHarvey, K. A., Kovalesky, A., Woods, R. K., & Loan, L. A. (2013). Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery. Heart & Lung : The Journal of Critical Care, 42(6), 399–406. https://doi.org/10.1016/j.hrtlng.2013.08.009
dcterms.referencesHelm, P. C., Kempert, S., Körten, M. A., Lesch, W., Specht, K., & Bauer, U. M. M. (2018). Congenital heart disease patients’ and parents’ perception of disease-specific knowledge: Health and impairments in everyday life. Congenital Heart Disease, 13(3), 377–383. https://doi.org/10.1111/chd.12581
dcterms.referencesInstituto Vasco de Estadistica. (n.d.). Definición Número de hijos. Retrieved May 16, 2020, from https://es.eustat.eus/documentos/opt_0/tema_734/elem_15341/definicion.html
dcterms.referencesKasparian, N. A., Kan, J. M., Sood, E., Wray, J., Pincus, H. A., & Newburger, J. W. (2019). Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice. Early Human Development, 104837. https://doi.org/10.1016/j.earlhumdev.2019.104837
dcterms.referencesKaugars, A., Shields, C., & Brosig, C. (2018). Stress and quality of life among parents of children with congenital heart disease referred for psychological services. Congenital Heart Disease, 13(1), 72–78. https://doi.org/10.1111/chd.12547
dcterms.referencesKolaitis, G. A., Meentken, M. G., & Utens, E. M. W. J. (2017). Mental Health Problems in Parents of Children with Congenital Heart Disease. Frontiers in Pediatrics, 5. https://doi.org/10.3389/fped.2017.00102
dcterms.referencesKonuk Şener, D., & Karaca, A. (2017). Mutual Expectations of Mothers of Hospitalized Children and Pediatric Nurses Who Provided Care: Qualitative Study. Journal of Pediatric Nursing, 34, e22–e28. https://doi.org/10.1016/j.pedn.2017.02.004
dcterms.referencesLandolt, M. A., Ystrom, E., Stene-Larsen, K., Holmstrøm, H., & Vollrath, M. E. (2014). Exploring causal pathways of child behavior and maternal mental health in families with a child with congenital heart disease: A longitudinal study. Psychological Medicine, 44(16), 3421–3433. https://doi.org/10.1017/S0033291713002894
dcterms.referencesLEY 911 DE 2004 CODIGO DEONTOLOGICO ENFERMERIA COLOMBIA. (n.d.). Retrieved August 2, 2020, from https://www.ucienfermeria.org/codigodeontologicoenfermeria
dcterms.referencesLisanti, Amy J., Kumar, A., Quinn, R., Chittams, J. L., Medoff-Cooper, B., & Demianczyk, A. C. (2021). Role alteration predicts anxiety and depressive symptoms in parents of infants with congenital heart disease: A pilot study. Cardiology in the Young, 31(11), 1842. https://doi.org/10.1017/S1047951121001037
dcterms.referencesLisanti, Amy J. (2018). Parental stress and resilience in CHD: a new frontier for health disparities research. Cardiology in the Young, 28(9), 1142–1150. https://doi.org/10.1017/s1047951118000963
dcterms.referencesLisanti, Amy Jo, Allen, L. R., Kelly, L., & Medoff-Cooper, B. (2017a). Maternal stress and anxiety in the pediatric cardiac intensive care unit. American Journal of Critical Care, 26(2), 118–125. https://doi.org/10.4037/ajcc2017266
dcterms.referencesLisanti, Amy Jo, Allen, L. R., Kelly, L., & Medoff-Cooper, B. (2017b). Maternal stress and anxiety in the pediatric cardiac intensive care unit. American Journal of Critical Care, 26(2), 118–125. https://doi.org/10.4037/ajcc2017266
dcterms.referencesLisanti, Amy Jo, Vittner, D., Medoff-Cooper, B., Fogel, J., Wernovsky, G., & Butler, S. (2019). Individualized Family-Centered Developmental Care: An Essential Model to Address the Unique Needs of Infants with Congenital Heart Disease. Journal of Cardiovascular Nursing, 34(1), 85–93. https://doi.org/10.1097/JCN.0000000000000546
dcterms.referencesLiu, J. F., Xie, W. P., Lei, Y. Q., & Cao, H. (2021). La relación entre las creencias religiosas y el estado mental , la carga de cuidado y la calidad de vida en padres de niños con cardiopatías congénitas. 1–7
dcterms.referencesLiu, Y., Chen, S., Zühlke, L., Black, G. C., Choy, M., Li, N., & Keavney, B. D. (2019). Global birth prevalence of congenital heart defects 1970–2017: updated systematic review and meta-analysis of 260 studies. International Journal of Epidemiology, 48(2), 455–463. https://doi.org/10.1093/ije/dyz009
dcterms.referencesMagán, I. M. C. (2016). Propiedades psicométricas del Inventario de Ansiedad: Rasgo – Estado (IDARE) en pacientes que asisten a la clínica de control de peso Isell figura Vital de Trujillo 2015 (Universidad Cesar Vallejo). https://doi.org/10.1017/CBO9781107415324.004
dcterms.referencesMainetti, J. A. (1989). CÓDIGO DE NÚREMBERG Tribunal Internacional de Núremberg, 1947. In ETICA MEDICA. Retrieved from http://www.bioeticanet.info/documentos/Nuremberg.pdf
dcterms.referencesManterola, C., & Otzen, T. (2015). Los Sesgos en Investigación Clínica. International Journal of Morphology, 33(3), 1156–1164. https://doi.org/10.4067/s0717-95022015000300056
dcterms.referencesMarch, S. (2017). Parents’ perceptions during the transition to home for their child with a congenital heart defect: How can we support families of children with hypoplastic left heart syndrome? Journal for Specialists in Pediatric Nursing, 22(3), e12185. https://doi.org/10.1111/jspn.12185
dcterms.referencesMarino, L. V., Wagland, R., Culliford, D. J., Bharucha, T., Sodergren, S. C., & Darlington, A.-S. E. (2021). “No Official Help Is Available”—Experience of Parents and Children With Congenital Heart Disease During COVID-19. World Journal for Pediatric and Congenital Heart Surgery, 12(4), 500–507. https://doi.org/10.1177/21501351211007102
dcterms.referencesNanda, NIC, NOC. (2020). Retrieved April 13, 2020, from Universidad de la sabana website: https://www-nnnconsult-com.ez.unisabana.edu.co/nic
dcterms.referencesNavarro-Tapia, S., Ramírez, M., Clavería, C., & Molina, Y. (2019). Validation of “The Parental Stressor Scale Infant Hospitalization modified, to Spanish” in a pediatric intensive care unit. Revista Chilena de Pediatria, 90(4), 399–410. https://doi.org/10.32641/rchped.v90i4.1020
dcterms.referencesRamírez L, M., Pino A, P., Springmuller P, D., & Clavería R, C. (2014). Parental stress in children undergoing congenital heart surgery. Archivos Argentinos de Pediatría, 112(3), 263–267. https://doi.org/10.1590/S0325-00752014000300012
dcterms.referencesReal Academia Española. (2014a). Diccionario de la Lengua. Retrieved May 16, 2020, from Madrid website: https://dle.rae.es/edad?m=form
dcterms.referencesReal Academia Española. (2014b). Diccionario de la lengua española. Retrieved May 16, 2020, from Madrid website: https://dle.rae.es/estado#7uGqJBt
dcterms.referencesRESOLUCION NUMERO 8430 DE 1993. , Ministerio de Salud § (1993).
dcterms.referencesRoberts, S. D., Kazazian, V., Ford, M. K., Marini, D., Miller, S. P., Chau, V., … Sananes, R. (2021). The association between parent stress, coping and mental health, and neurodevelopmental outcomes of infants with congenital heart disease. Clinical Neuropsychologist, 35(5), 948–972. https://doi.org/10.1080/13854046.2021.1896037
dcterms.referencesRodríguez-Rey, R., & Alonso-Tapia, J. (2016). Development of a screening measure of stress for parents of children hospitalised in a Paediatric Intensive Care Unit. Australian Critical Care, 29(3), 151–157. https://doi.org/10.1016/j.aucc.2015.11.002
dcterms.referencesRoy, C. (2014). Generating Middle Range Theory : From Evidence to Practice. Retrieved from https://login.ez.unisabana.edu.co/login?url=https://search.ebscohost.com/login.aspx?direct= true&AuthType=ip&db=e000xww&AN=635254&lang=es&site=eds-live&scope=site
dcterms.referencesSabzevari, S., Nematollahi, M., Mirzaei, T., & Ravari, A. (2016). The burden of care: Mothers’ experiences of children with congenital heart disease. International Journal of Community Based Nursing and Midwifery, 4(4), 374–385. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/27713900
dcterms.referencesService d’Information sur les Etudes et Professions. (2020). Retrieved July 18, 2020, from http://metiers.siep.be/metier/infirmier-infirmiere/
dcterms.referencesSimeone, S., Pucciarelli, G., Perrone, M., Rea, T., Gargiulo, G., Dell’Angelo, G., … Vosa, C. (2017). Comparative Analysis: Implementation of a Pre-operative Educational Intervention to Decrease Anxiety Among Parents of Children With Congenital Heart Disease. Journal of Pediatric Nursing, 35, 144–148. https://doi.org/10.1016/j.pedn.2017.01.008
dcterms.referencesSood, E., Karpyn, A., Demianczyk, A. C., Ryan, J., Delaplane, E. A., Neely, T., … Kazak, A. E. (2018a). Mothers and Fathers Experience Stress of Congenital Heart Disease Differently. Pediatric Critical Care Medicine, 1. https://doi.org/10.1097/PCC.0000000000001528
dcterms.referencesSood, E., Karpyn, A., Demianczyk, A. C., Ryan, J., Delaplane, E. A., Neely, T., … Kazak, A. E. (2018b). Mothers and Fathers Experience Stress of Congenital Heart Disease Differently. Pediatric Critical Care Medicine, 19(7), 1. https://doi.org/10.1097/PCC.0000000000001528
dcterms.referencesSpielberger, C. D., Gorsuch, R. L., & Lushore, E. (2010). STAI. Cuestionario de Ansiedad Estado-Rasgo. Sección de Estudios de TEA Ediciones, S. A. Madrid., 1–3.
dcterms.referencesTreyvaud, K., Spittle, A., Anderson, P. J., & O’Brien, K. (2019). A multilayered approach is needed in the NICU to support parents after the preterm birth of their infant. Early Human Development, 139. https://doi.org/10.1016/j.earlhumdev.2019.104838
dcterms.referencesUhm, J. Y., & Kim, H. S. (2019). Impact of the mother–nurse partnership programme on mother and infant outcomes in paediatric cardiac intensive care unit. Intensive and Critical Care Nursing, 50, 79–87. https://doi.org/10.1016/j.iccn.2018.03.006
dcterms.referencesVillamizar, B., & Durán, M. (2012). Modelo de adaptación de Roy en un ensayo clínico controlado. Avances En Enfemeria, XXX(2), 97–107.
dcterms.referencesVirani, S. S., Alonso, A., Benjamin, E. J., Bittencourt, M. S., Callaway, C. W., Carson, A. P., … Tsao, C. W. (2020). Heart Disease and Stroke Statistics—2020 Update: A Report From the American Heart Association. Circulation, 141(9), E139–E596. https://doi.org/10.1161/CIR.0000000000000757
dcterms.referencesWerner, O., El Louali, F., Fouilloux, V., Amedro, P., & Ovaert, C. (2019). Parental anxiety before invasive cardiac procedure in children with congenital heart disease: Contributing factors and consequences. Congenital Heart Disease, 14(5), 778–784. https://doi.org/10.1111/CHD.12777
dcterms.referencesYunta, E. R. (2004). COMITÉS DE EVALUACIÓN ÉTICA Y CIENTÍFICA PARA LA INVESTIGACIÓN EN SERES HUMANOS Y LAS PAUTAS CIOMS 2002. Acta BioetIca, 1, 37–47. Retrieved from
dcterms.referencesZarante, I., Carreño-Martinez, A. C., Ibañez, L. M., Gracia, G., Blandón, E., Perez, G., … Hurtado-Villa, P. (2021). Description and results of birth defects surveillance and follow-up programs in Bogotá and Cali, Colombia, 2002–2019. American Journal of Medical Genetics, Part C: Seminars in Medical Genetics, 187(3), 312–321. https://doi.org/10.1002/ajmg.c.31880
dcterms.referencesZhang, Q. L., Lei, Y. Q., Liu, J. F., Cao, H., & Chen, Q. (2021). Using telemedicine to improve the quality of life of parents of infants with CHD surgery after discharge. International Journal for Quality in Health Care, 33(3), 1–6. https://doi.org/10.1093/intqhc/mzab133
thesis.degree.disciplineFacultad de Enfermería y Rehabilitaciónes_CO
thesis.degree.levelMaestría en Enfermeríaes_CO
thesis.degree.nameMagíster en Enfermeríaes_CO


Ficheros en el ítem

Thumbnail

Este ítem aparece en la(s) siguiente(s) colección(ones)

Mostrar el registro sencillo del ítem

Attribution-NonCommercial-NoDerivatives 4.0 InternacionalExcepto si se señala otra cosa, la licencia del ítem se describe como Attribution-NonCommercial-NoDerivatives 4.0 Internacional